Who we are
About EXTOD
EXTOD - EXercise for Type 1 Diabetes - is a research-led programme run by doctors, nurses, dietitians, researchers and people living with Type 1 diabetes. We believe that with the right advice and guidance, you can take part in exercise safely. It may not always be easy, but it is possible.
Started
A clinical research question
How do we help people with Type 1 exercise without fear of hypos?
Based in
The NHS and UK universities
NHS diabetes services and university research groups across the UK.
Funded by
NIHR Research for Patient Benefit
With additional support from partner institutions.
Mission
No one with Type 1 diabetes should be left out of sport or exercise
We work to change the things in sport, healthcare and education that hold people with Type 1 back, and to break down the barriers - fear, stigma, lack of support - that stop them being active. We do that by combining lived experience, research and strong partnerships.
Daily exercise is one of the most powerful ways to manage glucose, just behind insulin and food. Our aim is that within ten years every person with Type 1 diabetes, whatever their age or background, knows why exercise matters, how to do it safely, and who is standing with them.
How we work
Five workstreams, each led by experts in the field
Research and Development
Led by Rob Andrews
Conducting and publishing high-quality research into Type 1 diabetes and exercise, and developing the next generation of scientists in this field.
Education and Training
Led by Manyee Li and Claire Foster
Education programmes for adults, adolescents and children with Type 1, their carers, healthcare professionals, coaches and teachers - starting with the face-to-face EXTOD course.
Policy and Partnerships
Led by Alistair Lumb and Rob Andrews
Working with government bodies, sporting organisations and clubs, charities, coaches and teachers to remove barriers through policy and organisational change.
Conferences
Led by Giorgio Carrieri and Manyee Li
Conferences for healthcare professionals, people with Type 1, and the coaches and PE teachers who support them.
Engagement and Communications
Led by Paul Coker and Jerry Gore
Building the EXTOD website and the EXTOD Buddies app to connect and support people with Type 1, and raising awareness of the programme's impact.
The team
The people behind EXTOD
A clinical, dietetic and academic team across the NHS and UK universities, working with people living with Type 1 diabetes at every stage.
Anne-Marie Frohock BSc (Hons) RD
Chair of EXTOD
Lead Paediatric Diabetes Dietitian, Oxford
Professor Rob Andrews
Co-founder · Research and Development lead
University of Exeter and Somerset NHS Foundation Trust
Professor Parth Narendran
Co-founder
University of Birmingham and Queen Elizabeth Hospital
Faculty and research group
Dr Alistair Lumb
Policy and Partnerships co-lead
Consultant in Diabetes and Acute Medicine, Oxford
Manyee Li
Education and Training / Conferences co-lead
Specialist Diabetes and Sport Dietitian, QEH Birmingham
Claire Foster
Education and Training co-lead
Specialist Diabetes Dietitian, Somerset
Giorgio Carrieri
Conferences co-lead
Lead Nurse, Children's Diabetes Team, Taunton
Paul Coker MSc, PhD Candidate
Engagement and Communications lead
Swansea University Medical School
Dr Matthew Cocks
EXTOD faculty
Lecturer in Exercise Physiology, Liverpool John Moores University
John Pemberton RD, PgDip, BSc
EXTOD faculty
Specialist Diabetes Dietitian, Birmingham
Francesca Annan BSc (Hons), MSc, FBDA, RD, SP
Conference Committee Manager
Lead Dietitian, University College London Hospitals
Dr Florence Kinnafick
EXTOD Research Group
Exercise Psychologist, Loughborough University
Dr Katie Hesketh
EXTOD Research Group
Assistant Professor, University of Birmingham
Christina (Chrissi) Cooper
EXTOD faculty
Clinical Nurse Specialist, QEH Birmingham
Collaboration
Universities and NHS trusts
EXTOD is a collaboration between NHS diabetes services and university research groups, with people living with Type 1 diabetes involved throughout.
Funding
NIHR Research for Patient Benefit programme
This work is funded by the National Institute for Health and Care Research (NIHR) Research for Patient Benefit programme. The views expressed are those of the team, not necessarily those of the NIHR or the Department of Health and Social Care.
Digital partner
Enhance-d
The interactive tools and this website were designed and built for EXTOD, free of charge, by Enhance-d - the exercise, data and community platform for people with diabetes.
Educational interpretation of research - not a medical device
Next
Where to go from here
If you live with Type 1 diabetes, start with the guides. If you support people with diabetes, start with the case for raising exercise in clinic.